The care for hospitalizaded children wiht complex chronic disease: experiences and learning

Abstract

Abstract: This article presents and discusses the subjective and intersubjective relationship between health professionals and hospitalized children with complex chronic health conditions and their families. This is part of a qualitative research, built from ethnografic method, in a pediatric ward of a federal hospital in Rio de Janeiro. Was sought the understanding of logic and deficiencies of hospital care, focusing mainly on subjective issues of children. This research allowed types of observations, that are organized in three topics: Movements, actors and interventions: Observing the setting, result of participant observation; Looking, understanding, interpreting and acting: listening to the ones who provide the care; Learning, understanding, interpreting, acting. The professional skills for comprehensive care of these children are built daily, based on the needs of each one them, encompassing their physical, subjective, collective aspects and their life history. The subjectivity and intersubjectivity are the propelling soul of dynamics of life in the ward. 

Keywords: Hospitalization; Pediatrics; Chronic Disease; Hospital Care; Learning Health Systen.